To ask His Majesty's Government whether they intend to have any discussions with the National Institute for Health and Care Excellence about routinely taking into consideration the impact on the physical and mental health of the person with a rare condition and their wider family.

The National Institute for Health and Care Excellence (NICE) develops its guidance independently, in line with its established methods and processes, which have been developed through extensive engagement with interested parties. In developing its guidance, the NICE takes into account all physical and mental health-related costs and benefits including, where relevant, the health-related benefits to carers and the wider family.